This is Stephan and his 18-month-old daughter Hannah.He’s a designer from Dublin who likes to put his kid in various precarious situations, from crawling up ladders to chilling with a set of knives. Stephan is superimposing Hannah into ‘marginally dangerous’ situations to raise awareness of Hemophagocytic Lymphohistiocytosis (HLH) – the very rare immune disorder that she’s been battling with.
She had a very rare immune disorder called HLH and spent six months of her first year in hospital, receiving chemotherapy and a bone marrow transplant, which is the only possible cure.‘Of 27 million worldwide donors, three were deemed suitable, and an anonymous German lady donated.

